Study Library

Existing Studies

Keep the validated instrument your field already trusts, and add continuous, real-world data from the days between visits. See how that works for each condition, or use one as the starting point for your own study.

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16 studies available

Rare DiseaseChromosomal / Neurodevelopmental

9p Deletion Syndrome (Alfi's Syndrome) Monitoring

Voice-first daily monitoring for 9p deletion syndrome, capturing seizures, GI and feeding, G-tube care, development, and off-label cannabidiol response between clinic visits.

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OncologyGastrointestinal Malignancy

Colorectal Cancer Monitoring

Voice-first symptom and treatment monitoring for colorectal cancer, capturing chemotherapy toxicity, immunotherapy adverse events, bowel function, neuropathy progression, nutritional status, and financial burden in real time.

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DermatologyRare Genetic Skin Fragility

Epidermolysis Bullosa Monitoring

Voice-first health observation platform for Epidermolysis Bullosa, capturing wound status, pain, itch, nutrition, treatment response, and quality of life through natural language.

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NeurologyHereditary Neurodegenerative

Friedreich's Ataxia

Voice-first daily monitoring for Friedreich's Ataxia, capturing gait and mobility decline, falls, cardiac symptoms, speech changes, Skyclarys treatment response, and fatigue between annual mFARS assessments.

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CardiologyChronic Heart Failure (HFrEF, HFpEF, HFmrEF)

Heart Failure Monitoring

Voice-first daily monitoring of weight, fluid status, breathlessness, functional capacity, medication adherence, and psychosocial wellbeing for heart failure patients.

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DermatologyInherited Keratinization Disorders

Ichthyosis Monitoring

Voice-first daily tracking of skin severity, skincare routine adherence, itch, thermoregulation events, and infection signs for patients and caregivers managing inherited ichthyosis.

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NeurologyGeneralized, AChR-positive (Biologic-Treated)

Myasthenia Gravis Monitoring

Real-world data collection for AChR-positive generalized MG patients on biologic therapy, capturing fatigable weakness, bulbar safety, infusion cycles, and daily functional status alongside the MG-ADL.

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Rare DiseaseGenetic Tumor-Predisposition (RASopathy)

Neurofibromatosis Type 1 Monitoring

Voice-first daily monitoring for NF1 that keeps the PAINS-pNF and PII-pNF and adds a continuous stream of tumor pain, MEK-inhibitor tolerability, and MPNST red flags between visits.

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Rare DiseaseNF2-Related Schwannomatosis (Genetic Tumor-Predisposition)

Neurofibromatosis Type 2 Monitoring

Voice-first, between-visit monitoring of hearing, tinnitus, balance, facial and visual function, pain and mood for people with NF2-related schwannomatosis.

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DermatologyRare Genetic Keratoderma

Pachyonychia Congenita Monitoring

Daily plantar pain and function monitoring for the PC community that runs alongside the pain NRS, capturing the between-visit real-world stream clinic visits miss and clinical trials need.

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EpilepsyPediatric (ages 2-17)

Pediatric Epilepsy Monitoring

Voice-first caregiver-reported seizure monitoring for pediatric epilepsy, capturing seizure events, medication effects, school impact, developmental changes, and rural healthcare access barriers in real time.

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Rare DiseaseLysosomal Storage / Neuromuscular

Pompe Disease Monitoring

Structured daily monitoring for adults with late-onset Pompe disease, capturing respiratory symptoms, motor function, ERT infusion experience, pain, and fatigue between clinic visits.

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NeurologyAutonomic Dysfunction

POTS Monitoring

Voice-first health observation platform for POTS, capturing orthostatic vitals, symptom severity, brain fog, fatigue, hydration, exercise tolerance, and autonomic dysfunction patterns through natural language.

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OncologyGenitourinary Malignancy

Prostate Cancer Monitoring

Voice-first symptom and treatment monitoring for prostate cancer, capturing urinary recovery, ADT side effects, PSA anxiety, bone pain, sexual function, and treatment response across the full disease trajectory.

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EpilepsyTreatment-Resistant (Adult)

Refractory Epilepsy Monitoring

Voice-first seizure and medication burden tracking for adults with drug-resistant epilepsy, capturing seizure clusters, polypharmacy side effects, rescue medication use, device interactions, and the quality-of-life collapse that defines treatment resistance.

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EpilepsyPediatric Seizure Disorders

Rural Pediatric Epilepsy Monitoring

Voice-first daily monitoring for children with epilepsy in rural and remote communities, capturing seizure events, medication effects, cognitive changes, and caregiver burden between distant specialist visits.

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