Your patients' symptoms change by the hour. Your data collection doesn't.
Myasthenia gravis is defined by fluctuation — weakness that worsens with activity, improves with rest, and shifts unpredictably across muscle groups throughout the day. Clinic visits capture a single snapshot. Forma captures the full picture.
The challenge
Why traditional data collection fails for Myasthenia Gravis
MG-ADL scores at quarterly visits tell you where a patient was at 10am on a Tuesday. They don't tell you about the choking episode at dinner, the arms that gave out folding laundry, or the night spent propped on three pillows unable to breathe lying flat. Between visits, the disease fluctuates without a record — and the most clinically meaningful moments happen when no one is measuring.
The approach
Capture data the way patients experience their condition
Forma turns each patient into a continuous data stream. By voice or text, patients log what's happening in the moment — fatigable weakness, bulbar safety events, infusion responses, breathing changes — in 20 seconds. No forms, no recall bias. The result is structured, longitudinal data across every MG domain, paired with the clinical assessments you already collect.
Meet the patients in this demo
Sarah, 34
Generalized MG, on Vyvgart infusion cycles. Works part-time from home. Bulbar and limb-predominant symptoms.
Frank, 67
Late-onset MG, on azathioprine and prednisone with IVIg for flares. History of myasthenic crisis. Wife helps log.
How it works
From patient voice to structured data
Patients log what's happening in their own words — by voice or text. Forma structures every observation into research-ready data automatically.
“My arms gave out folding laundry after about 8 minutes. Had to sit down and rest before I could finish. Definitely worse later in the day.”
“Couldn't finish my sandwich — jaw gave out halfway through. Had to eat yogurt for lunch instead.”
“I can only get a few words out before I have to stop to breathe. This is much worse than last week.”
“Had my Vyvgart infusion today — this is week 2 of 4 in my current cycle. The infusion took about an hour. No reactions this time.”
“Bad day. Speech is a 3 — people can't understand me. Swallowing is a 2, chewing is a 2. Breathing is a 1. Arms are a 2, can't get up without pushing — score 2. Both eyelids drooping — score 2. Diplopia every day but not constant — score 2.”
The insight
What continuous data reveals
Individual observations compound into a longitudinal picture that clinic visits alone cannot provide. Here's what one treatment cycle looks like through daily patient logs.
Arms gave out folding laundry. Eyelid droop starting in the evening. Speech slightly nasal.
Choked on water at dinner. Switched to thickened liquids. Double vision in the evening.
Fatigue hit hard — cancelled plans, two naps. Swallowing back to normal.
Week 1 Vyvgart infusion. Mild headache after — 3/10. Otherwise fine.
Slightly better after infusion. Managed to work 3 hours. Eyelid droop only after reading.
Good day — ate a normal dinner, no choking. Mestinon causing some cramping.
Week 2 Vyvgart infusion. No reactions. Already feeling noticeably stronger.
Best day in weeks. Folded laundry, did dishes, styled hair without stopping. No choking at all.
Week 3 — usually the best week. Speech clear, swallowing normal, arms strong.
Starting to feel the cycle wearing off. Arms slightly weaker, eyelid droop returning.
Final week 4 infusion. Cycle complete. Bulbar symptoms have improved dramatically over the month.
Key insight
Over one Vyvgart cycle, Sarah's daily logs reveal what clinic visits cannot: arms improving from score 2 to 0 by week 3, a choking episode on day 2 that triggered a safety flag, and the visible correlation between infusion timing and functional recovery. This is the data that turns a quarterly MG-ADL score into a continuous treatment response curve.
See Myasthenia Gravis configured for your study
See Forma configured for MG