Your patient's seizure diary says '3 this week.' It doesn't say which one happened in the shower.
Refractory epilepsy affects one-third of all epilepsy patients — people who've tried 2+ medications and still seize. They manage 3-5 drugs simultaneously, carry rescue medications everywhere, and organize their entire lives around seizure risk. Yet the data that reaches their neurologist is a paper diary count and a 15-minute visit every 3-6 months. The daily granularity needed to evaluate novel therapies, detect cluster patterns, and prevent SUDEP goes uncaptured. Forma captures this signal.
Forecast
Based on prior Topics logging
Topics
How it works
15 seconds of speech. 25 data points.
Forma turns each patient into a continuous data stream. By voice or text, patients log seizure events with type, duration, triggers, and post-ictal state, medication doses and side effects across 3-5 drugs simultaneously, rescue medication use with response tracking, VNS/RNS device interactions, injury events, and quality-of-life impacts in under a minute. No forms, no recall bias — and voice is essential because some patients have post-ictal confusion that makes typing impossible. The result is a structured, longitudinal dataset that pairs seizure frequency with medication timing gaps, cluster patterns with trigger profiles, and device-assisted aborted seizures with progression trajectories — visible to the neurologist before the next visit.
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Forecast
Based on prior Topics logging
Topics
Structured, coded, longitudinal
- Timing
- Seizure time:6:00 AMSeizure duration:45 secRecovery time:20 minMissed dose time:Previous evening
- Location
- Injury location:Tongue
- Severity
- Injury:Tongue bitePost-ictal symptom:Confusion
- Actions
- Adherence:Missed doseMedication:Keppra
- Environmental
- Barometric pressure:29.82 inHg (falling)Moon phase:Waxing gibbous (87%)
See Refractory Epilepsy configured for your study
See Forma configured for Refractory Epilepsy