The 3-hour bandage change your patient endured this morning is invisible to their medical record.
Epidermolysis Bullosa is a daily battle of wound care, pain management, and nutritional survival — yet clinical assessment relies on periodic wound counts and clinic-visit pain scores that miss the daily trajectory entirely. Three disease-modifying therapies launched between 2023-2025, and the field urgently needs real-world outcome data that no existing tool captures. Forma provides this continuous signal.
Forecast
Based on prior Topics logging
Topics
How it works
15 seconds of speech. 25 data points.
Forma turns each patient into a continuous data stream. By voice or text, patients and caregivers log daily wound counts, pain across three dimensions (background, procedural, breakthrough), itch severity, treatment application and per-wound response, nutritional intake, hand function changes, and suspicious wound changes in under a minute. Voice-first is essential — many EB patients have mitten hands from pseudosyndactyly and cannot type. The result is a structured, longitudinal dataset across every EB domain — Vyjuvek healing trajectories per treated wound, pain trends correlated with bandage change techniques, and cancer surveillance flags visible in real time.
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Forecast
Based on prior Topics logging
Topics
Structured, coded, longitudinal
- Timing
- Time of onset:This morningShower duration:15 min
- Location
- Crack location:Feet
- Severity
- Crack count:3 newCrack status:New onsetPain severity:Extreme
- Actions
- Cream applied:Vanicream
- Environmental
- Humidity:34%Temperature:72°FAir quality (AQI):42 — Good
- Outcome
- Pain outcome:Significantly decreasedTreatment response:Positive
See Epidermolysis Bullosa configured for your study
See Forma configured for Epidermolysis Bullosa