Forma Health Blog
Evidence-based writing for patient-advocacy leaders, academic PIs, and research operations teams. On ePRO, EMA, real-world evidence, patient registries, and the conditions we work with every day.
Patients document fewer than half of their seizures when you compare diaries against video-EEG. That has consequences for every epilepsy trial that uses a diary as its primary endpoint.
ePRO, EMA, and RWD get conflated constantly in grant applications and protocols. They're related but distinct. Here's what each one actually means and how to write about them precisely.
Long-running patient registries lose participants to survey fatigue. It's the leading modifiable cause of dropout — and it's addressable with design changes, not patient coaching.