Epilepsy Research
Epilepsy research deserves better data than weekly seizure diaries.
Traditional seizure diaries miss 50% of events. Forma Health captures every seizure as it happens, with context, timing, and medication data that surveys can't match.
Custom demo · Set up in under 1 hour
The problem
Why traditional data collection falls short
Seizure diaries are unreliable. Patients forget events, misremember timing, and can't capture the nuance of auras, triggers, and post-ictal states. Your study data suffers.
What patients log
Observations configured for epilepsy
Capture seizure events, triggers, medication adherence, and recovery patterns in real-time — not from recall weeks later.
- Seizure type and duration
- Pre-ictal aura symptoms
- Post-ictal recovery
- Medication timing and adherence
- Sleep quality and patterns
- Trigger identification (stress, light, sleep deprivation)
- Rescue medication usage
What you get
Research-ready data points
- Timestamped seizure events with duration
- Medication adherence rates (hourly resolution)
- Sleep-seizure correlation data
- Trigger frequency analysis
- Quality of life longitudinal scores
Frequently asked
Epilepsy research questions, answered
- How is Forma Health different from a traditional seizure diary or ePRO?
- Traditional seizure diaries and static ePROs rely on retrospective recall and fixed survey windows. Forma captures each seizure event in real time with full context — type, duration, aura, post-ictal state, rescue medication — so investigators get continuous, timestamped data instead of weekly snapshots.
- Can Forma be used in a natural history study or patient registry for epilepsy?
- Yes. Forma is designed for long-running natural history studies, patient registries, and real-world evidence (RWE) programs. Data is collected into a structured, longitudinal repository that supports cohort queries, endpoint generation, and regulatory submissions.
- Does Forma support refractory or drug-resistant epilepsy cohorts?
- Forma is condition-agnostic within epilepsy and routinely configured for refractory epilepsy, focal epilepsy, and generalized epilepsy cohorts, including pediatric populations. Observation templates are tailored to the protocol.
- What validated instruments can Forma deliver alongside real-time logging?
- Forma can schedule validated surveys (e.g. QOLIE-31, NDDI-E) alongside continuous event logging, so investigators keep the rigor of validated instruments while adding the granularity of real-time data.
- How long does it take to configure Forma for a new epilepsy study?
- Most epilepsy study configurations are live within an hour. We work from your protocol, endpoints, and eCRF to produce a ready-to-use patient app and data export pipeline.
How it works
15 seconds of speech. 25 data points.
Patients describe their epilepsy experience naturally — Forma extracts structured, timestamped, coded data in real time. No surveys. No recall bias.
Forecast
Based on prior Topics logging
Topics
Ready to see Forma configured for epilepsy?
We'll set up your condition-specific data collection in under an hour.