Pediatric Epilepsy
Purpose-built data collection for pediatric epilepsy studies — capturing seizure events, developmental milestones, and caregiver observations in real-time.
Study Overview
About this study
Pediatric epilepsy presents unique challenges for clinical research: caregivers report on behalf of young patients, developmental context matters, and seizure presentations differ from adult populations. Forma Health's pediatric epilepsy configuration captures caregiver-reported seizure events, medication timing, behavioral changes, and developmental observations — providing researchers with the pediatric-specific longitudinal data that generic seizure diaries miss entirely.
What's included
Key features
- Caregiver-reported seizure logging with pediatric-specific event types
- Developmental milestone tracking alongside seizure data
- Age-appropriate medication adherence monitoring
- School and activity impact assessment
- Behavioral and cognitive change tracking between visits
Topic Configuration
Configured topics
Each study includes pre-configured topics that patients interact with daily. Here are examples of how we've set up data collection for this study.
Seizures
Detailed seizure event capture designed for pediatric presentations, reported by caregivers with contextual information.
Sample questions
- Did your child experience a seizure today?
- What type of seizure did you observe (absence, tonic-clonic, focal)?
- How long did the seizure last?
- What was your child doing before the seizure started?
Mood
Track behavioral and emotional changes in pediatric patients, which can indicate medication effects or seizure-related impacts.
Sample questions
- How has your child's mood been today?
- Did your child seem more irritable or withdrawn than usual?
- Has your child expressed any fears or anxieties today?
- Were there any behavioral changes you noticed after the last seizure?
Pain
Capture pain reports from caregivers, including post-ictal headaches and medication side effects common in pediatric patients.
Sample questions
- Did your child complain of any pain today?
- Did your child experience a headache after a seizure?
- Has your child shown signs of physical discomfort (crying, guarding)?
- Rate your child's apparent pain level from 0 to 10.
Bowel Movements
Monitor gastrointestinal health, which can be affected by anti-epileptic medications and is important for pediatric medication management.
Sample questions
- How many bowel movements did your child have today?
- Was the consistency normal for your child?
- Has your child experienced constipation or diarrhea recently?
- Have you noticed any digestive changes since the last medication adjustment?
Ready to see Pediatric Epilepsy in action?
Book a demo and we'll walk you through this study configuration live.